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9:49
YouTube
National Scleroderma Foundation
Scleroderma Awareness Month
June is Scleroderma Awareness Month, all month long. Every person's experience with scleroderma is unique and #everyjourneymatters. This June lets raise awareness of all those battling this chronic disease. Discover the ways we support the scleroderma community at scleroderma.org. #TealTalk
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Signs and Symptoms of Scleroderma | Johns Hopkins
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在视频中查找 00:50
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Stanford Medicine 25
0:59
Today is the first day of Scleroderma Awareness Month and I wanted to show you how this disease frustrates me day in and day out. It can be agonizing. Be kind to everyone and protect your energy. 💖#scleroderma #disabilityawareness | Scleroderma Strong
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1:31
June is Scleroderma Awareness Month! Join us as we launch the #SayScleroderma campaign to bring attention to this disease, its complications, and the urgent need for research. Lack of awareness can lead to delays in treatments and diagnosis. But we won't accept that — by working together as a community, we can change the narrative and create real progress toward ultimately finding a cure for scleroderma. To kick things off this month, in this video, Andrew talks about his journey with scleroderm
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Facebook
Scleroderma Research Foundation
0:05
We’re excited to announce our 2025 Scleroderma Awareness Month theme: Stories of Strength! 💙 This June, we’re shining a light on the powerful, inspiring journeys of individuals and families impacted by scleroderma. From courage in the face of challenges to hope that moves mountains - your stories are the heartbeat of this community. Together, we are #StrongerThanScleroderma. To learn more about Awareness Month visit https://scleroderma.org/2025-scleroderma-awareness-month/ #NationalSclerodermaF
已浏览 1167 次
1 年前
Facebook
National Scleroderma Foundation
1:24
June is scleroderma Awareness Month 🎗️ and we’re coming together to shine a light 💡 on this rare autoimmune disease that affects around 19,000 people in the UK. Scleroderma can be life-threatening, and all forms of the condition can impact daily life, but with understanding and support, no one has to face it alone. This month, we’re asking for your help. One simple act can make a big difference: please share our #SayScleroderma film to spread awareness far and wide. And if you feel inspired to
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Facebook
Scleroderma & Raynaud's UK - SRUK
1:31
It’s Scleroderma Awareness Month, and Brian is telling us why he chooses to #SayScleroderma! Why #SayScleroderma? Because not enough people know what this disease is or what it does. Because delayed awareness leads to delayed diagnoses and treatment. And because scleroderma must END. We are so grateful to Brian for sharing his scleroderma journey, and for helping spread awareness about this challenging disease. #SayScleroderma is a collaborative movement to make this disease known—which means th
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