In rare disease research, data drives progress. But who owns the data and controls its use matters just as much. For the SCN2A Related Autism & Epilepsy: The FamilieSCN2A Foundation, data ownership was essential. They partnered with NORD’s IAMRARE® platform, which keeps patients and advocacy groups in control while producing high-quality, research-ready data. Hear how the FamilieSCN2A Foundation is advancing autism and epilepsy research on their terms. Learn more at iamrare.org. | National Organ
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